U.S. Indigenous Data Sovereignty Network

The Intersection of Indigenous Data Sovereignty and Federal Research Funding: A Roundtable Discussion

| KARINA WALTERS (citizen of Choctaw Nation), Director of the Tribal Health Research Office (THRO) &

| KATHY ETZ, Director of Native Collective Effort to Enhance Wellness (N CREW) Program &

| ANGELA WALDEN (citizen of Cherokee Nation), Scientific Program Director, N CREW Program &

| JESSICA MAZERIK, Health Scientist Administrator, Program Director, Helping to End Addition Long-Term (HEAL) Initiative Data Ecosystem

Federal funding often requires data sharing, though justified exceptions are allowed. Understanding how the principles and practices of Indigenous Data Sovereignty intersect with requests to share data and inform best practices for data management and sharing is critical for supporting appropriate research engagement with Indigenous communities and informing Indigenous health governance. Through this roundtable, The National Institutes of Health (NIH) Tribal Health Research Office (THRO) and the National Institute on Drug Abuse (NIDA) Native Collective Research Effort to Enhance Wellness (N CREW) Program seek to further discussion on the intersection of Indigenous data sovereignty and federal funding. Discussion will center Native voices and support further understanding of the issues and challenges related to Indigenous Data Sovereignty and federal funding and support advancing best practices. Topics considered will include sovereignty in all aspects of the research process, with a particular focus on data collection, stewardship, maintenance, analysis, reporting, sharing (understanding if, when and how allowed), and catalyzing action. The session will include questions posed by the facilitators that invite participants to share their perspectives, expertise, and experiences.

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